After months of hearing only EEEEEEEEEEEE and screaming/crying Sean FINALLY started babbling!! He can say babababa and mamamama and wawawawawowowo. EEEEEEEEEEEEE has not left the building it is still a large part of his vocabulary but it was so nice to hear sweat baby sounds coming from Sean:)
Spoke with the Pulmonologist and he ordered a modified barium swallow this time he said to make sure they do it correctly naming the different consistencies and telling me not to leave the study until they do it completely. He also recommended going to Duke to get a fresh set of eyes on Sean's case. So we have Levine all day on Thursday and Duke all day on Friday.